Genetic discrimination (GD) is a complex, multifaceted ethical, psychosocial, and legal
phenomenon. It is defined as the differential treatment of asymptomatic individuals or their …

Biobanks 1 have emerged as a significant research tool, gaining support from both the
scientific community and regional, national and international research funding agencies …

Biobanks have been heralded as essential tools for translating biomedical research into
practice, driving precision medicine to improve pathways for global healthcare treatment and …

Research Ethics Recommendations for Whole-Genome Research: Consensus Statement |
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Margaret Otlowski investigates the complex and controversial issue of active voluntary
euthanasia. She critically examines the criminal law prohibition of medically administered …

Objectives: The necessity for biobanks to share their resources with third parties poses
potential risks to public trust and the intention to participate in genetic research. We explore …

Fears of genetic discrimination in life insurance continue to deter some Australians from
genetic testing. In July 2019, the life insurance industry introduced a partial, self-regulated …

Background: The success of human population biobanks are dependent on the publics'
willingness to participate. This research aimed to determine those factors important in …

We report first results from the Australian Genetic Discrimination Project of clinical genetics
services clients' perceptions and experiences regarding alleged differential treatment …

We report previously undocumented evidence of genetic discrimination by Australian
insurance companies, obtained through direct consumer reports. We surveyed 174 …