Table 1

List of selected guidelines, frameworks, training resources and toolkits relevant to PIL co-design

Author/publisherTitleURL
Medicines and Healthcare Products Regulatory Agency (MHRA)Best practice guidance on patient information leaflets (PILs) https://assets.publishing.service.gov.uk
NHS DigitalCreating better content for users with low literacy https://digital.nhs.uk/blog/transformation-blog/2019/creating-better-content-for-users-with-low-health-literacy
NHS EnglandDesign principles: NHS digital service manual https://service-manual.nhs.uk/design-system/design-principles
NHS EnglandAccessible Information Standard https://www.england.nhs.uk/about/equality/equality-hub/patient-equalities-programme/equality-frameworks-and-information-standards/accessibleinfo/
Patient Information Forum (PIF) TickTrusted information toolkit for healthcare professionals https://piftick.org.uk/healthcare-professionals-information/
Health Education EnglandHealth literacy ‘how to’ guide https://www.hee.nhs.uk/our-work/population-health/training-educational-resources
Health Education England, Health Dialogues, NHS England Department of Health, Lancashire Care NHS Foundation TrustMaking Every Contact Count (MECC) https://www.e-lfh.org.uk/programmes/making-every-contact-count /
NHS England Department of Health and Social CareB1762: Guidance on working in partnership with people and communities https://www.england.nhs.uk/publication/working-in-partnership-with-people-and-communities-statutory-guidance/
Alexandra Freeman. Drug and Therapeutics Bulletin 2019; 57:119–124How to communicate evidence to patients http://dx.doi.org/10.1136/dtb.2019.000008
Academy of Medical Royal CollegesPlease, write to me: Writing outpatient clinic letters to patients Guidance https://www.aomrc.org.uk/reports-guidance/please-write-to-me-writing-outpatient-clinic-letters-to-patients-guidance/