UV dose to face, and mean scores for some key psychosocial factors divided according to grouping from the qualitative interview study
‘Dominated’ group | ‘Integrated’ group | ‘Resistant’ group | |
Number of patients | 4 | 10 | 6 |
Mean daily UV dose to face (SED/day) | 0.04 | 0.12 | 0.2 |
Psychosocial factor | Mean score for psychosocial factor | Mean score for psychosocial factor | Mean score for psychosocial factor |
‘Timeline or duration of XP’ (0 a very short time; 10 forever) | 9.5 | 10 | 8.8 |
‘Necessity’ of photoprotection (score 1–7) | 4.5 | 4.1 | 3.4 |
‘Automaticity’ of photoprotection (score 1–7) | 4.7 | 3.4 | 2.8 |
‘Consequences’ of XP on life (0–10) | 8.3 | 5.5 | 5.9 |
Level of social support (1–5) | 4.0 | 4.1 | 3.1 |
SED, standard erythemal dose; UV, ultraviolet; XP, xeroderma pigmentosum.