Table 2

Characteristics of study participants

HNPCCFAPTotal
*Affected corresponds to history of colon cancer for HNPCC, or history of multiple colonic adenomas for FAP.
Subjects261844
Families141226
Women (No (%))16 (62)12 (63)28 (64)
Age (median (range)) y41 (17–68)35 (17–53)40 (17–68)
Phenotype (No (%)):
    Affected*7 (27)12 (67)19 (43)
    Unaffected19 (73)6 (33)25 (57)
Personal history of colorectal cancer (No (%))7 (27)4 (21)11 (25)
History of colectomy (No (%))6 (23)12 (27)18 (41)
    Total145
    Subtotal279
    Partial314
Visited doctor in past 12 months (No (%)):
    Primary care24 (92)17 (94)41 (93)
    Gastroenterologist15 (58)12 (67)27 (61)
    Oncologist9 (35)7 (39)16 (36)
    Gynaecologist (women only)10 (63)7 (58)17 (61)