Characteristics of study participants
| HNPCC | FAP | Total | |
|---|---|---|---|
| *Affected corresponds to history of colon cancer for HNPCC, or history of multiple colonic adenomas for FAP. | |||
| Subjects | 26 | 18 | 44 |
| Families | 14 | 12 | 26 |
| Women (No (%)) | 16 (62) | 12 (63) | 28 (64) |
| Age (median (range)) y | 41 (17–68) | 35 (17–53) | 40 (17–68) |
| Phenotype (No (%)): | |||
| Affected* | 7 (27) | 12 (67) | 19 (43) |
| Unaffected | 19 (73) | 6 (33) | 25 (57) |
| Personal history of colorectal cancer (No (%)) | 7 (27) | 4 (21) | 11 (25) |
| History of colectomy (No (%)) | 6 (23) | 12 (27) | 18 (41) |
| Total | 1 | 4 | 5 |
| Subtotal | 2 | 7 | 9 |
| Partial | 3 | 1 | 4 |
| Visited doctor in past 12 months (No (%)): | |||
| Primary care | 24 (92) | 17 (94) | 41 (93) |
| Gastroenterologist | 15 (58) | 12 (67) | 27 (61) |
| Oncologist | 9 (35) | 7 (39) | 16 (36) |
| Gynaecologist (women only) | 10 (63) | 7 (58) | 17 (61) |