Table 2

Pregnant women's attitudes and willingness to pay (WTP) for carrier screening for deafness genes

StatementDefinitely not % (number) WTP (£) (number)Probably not % (number) WTP (£) (number)Don't know % (number) WTP (£) (number)Probably yes % (number) WTP (£) (number)Definitely yes % (number) WTP (£) (number)Test
If the test was available, do you think you would like to know if you were a carrier of a deafness gene?2.9 (3)11.5 (12)15.4 (16)46.2 (48)24.0 (25)
Mean WTP0.00 (2)28.00 (10)33.00 (14)38.00 (44)63.00 (24)Z=5.07, p=0.027
If you and your partner did have tests, and were both found to be carriers for a deafness gene, do you think that you would ask for tests to find out if the baby would be born deaf?3.8 (4)7.7 (8)14.4 (15)43.3 (45)30.8 (32)
Mean WTP0.00 (3)10.00 (6)23.00 (14)37.00 (40)66.00 (31)Z=17.36, p=0.001
If in pregnancy your genetic tests indicated that the baby would be deaf, do you think that you would have a termination?47.1 (49)26.0 (27)20.2 (21)0.8 (6)1.0 (1)
Mean WTP26.00 (42)50.00 (25)67.00 (20)33.00 (6)20.00 (1)Z=4.75, p=0.032
If you and your partner were both found to be carriers, do you think that this knowledge would affect your decision to have more children in the future?23.1 (24)29.8 (31)28.8 (30)14.4 (15)3.8 (4)
Mean WTP31.00 (21)43.00 (29)41.00 (26)46.00 (14)75.00 (4)Z=2.10, p=0.151
Even if you would not want a carrier test yourself, do you think that the test should be available for other people?0 (0)2.9 (3)1.0 (1)46.2 (48)47.1 (49)
Mean WTP15.00 (2)10.00 (1)25.00 (43)60.00 (46)Z=12.65, p=0.001