Survival of affected subjects
| Survival | Frequency | Reference |
|---|---|---|
| Alive up to 4 weeks | 5 | 23, 39, 46, 52, 59 |
| Alive up to 1 year | 16 | 3 (two cases),8,11,14,20,22,23,30,39,52 (two cases),57,63,64,67 |
| 1-10 years | 16 | 5,9,13,25,28 (four cases),33,35,39,43,48,54,66,69 |
| 10-20 years | 8 | 37,60 (two cases),61,62,65,66,68 |
| Older than 20 years | 2 | 58 (two cases) |
| Age unstated, alive | 18 | 10,18,24,38,41,45 (six cases),49,60,62 (five cases) |
| Stillborn or spontaneous abortion | 8 | 4 (two cases),15,19,26,42,50,51 |
| Termination of pregnancy | 15 | 4,15–17,19,21,29,36 (two cases),44 (two cases),47,50,53,55 |
| Died, age uncertain | 1 | 39 |
| Died in first week of life | 24 | 4 (eight cases),7,11,12,16 (two cases),19 (two cases),21,26,31,32 (two cases),34,40,41,46 |
| Died in first year of life | 4 | 3, 27, 56, 58 |