Participants n=76 couples (%) | Non-participants n=53 couples (%) | |
Familiarity with the disease | ||
Yes-Yes | 34 | 28 |
Yes-No | 36 | 30 |
No-No | 30 | 42 |
Knowledge of the disease | ||
High-High | 62 | 342-165 |
High-Low | 26 | 252-165 |
Low-Low | 12 | 412-165 |
IHLC 2-151 | ||
High-High | 33 | 232-160 |
High-Low | 40 | 242-160 |
Low-Low | 27 | 532-160 |
Perceived discomfort | ||
High-High | 0 | 112-165 |
High-Low | 3 | 232-165 |
Low-Low | 97 | 662-165 |
Perceived susceptibility | ||
High-High | 1 | 4 |
High-Low | 13 | 8 |
Low-Low | 86 | 88 |
Perceived benefits | ||
High-High | 77 | 342-165 |
High-Low | 18 | 262-165 |
Low-Low | 5 | 402-165 |
Perceived impact barriers | ||
High-High | 5 | 382-165 |
High-Low | 32 | 382-165 |
Low-Low | 63 | 242-165 |
Burden of disease | ||
High-High | 67 | 55 |
High-Low | 17 | 24 |
Low-Low | 16 | 21 |
Burden of child with disease | ||
High-High | 75 | 64 |
High-Low | 18 | 25 |
Low-Low | 7 | 11 |
Burden of treatment | ||
High-High | 22 | 19 |
High-Low | 38 | 26 |
Low-Low | 40 | 55 |
For five couples, data for only one partner were available. In the analyses, data of the available partner were used for the missing data of the other partner. Analyses without these five couples showed the same results.
↵2-150 High-High/Yes-Yes (both partners of a couple scoring High/Yes on the variable). High-Low/Yes-No (one partner scoring High/Yes (male or female) and one partner scoring Low/No (male or female)). Low-Low/No-No (both partners of a couple scoring Low/No on the variable).
↵2-151 Internal health locus of control scale.
Chi-square tests for comparison of participating and non-participating couples,
↵2-160 p<0.01,
↵2-165 p<0.001.