What families most wanted from a clinical genetic service
| Responses | % of families responding to this question (n=130) | |
| Definite diagnosis/cause | 76 | 58.5 |
| To address issues surrounding self-blame | 16 | 12.3 |
| Prognosis | 17 | 13.1 |
| Recurrence risks | ||
| For themselves (parents) | 22 | 16.9 |
| For their hearing impaired children | 38 | 29.2 |
| For their hearing children | 20 | 15.4 |
| Information about future advances and treatment | 20 | 15.4 |
| Follow up/review | 8 | 6.2 |
| More general information or improvement in other services | 19 | 14.6 |