Table 3

What families most wanted from a clinical genetic service

Responses % of families responding to this question (n=130)
Definite diagnosis/cause7658.5
To address issues surrounding self-blame1612.3
Recurrence risks
 For themselves (parents)2216.9
 For their hearing impaired children3829.2
 For their hearing children2015.4
Information about future advances and treatment2015.4
Follow up/review86.2
More general information or improvement in other services1914.6