Demographics of patients with MPS VII (n=56)
| Statistics | Value | |
|---|---|---|
| Number enrolled | n | 56 |
| Gender | ||
| Male | 30 (53%) | |
| Female | 20 (36%) | |
| Unknown* | 6 (11%) | |
| Ethnicity | ||
| Caucasian—Non-Hispanic | n (%) | 35 (62%) |
| Caucasian—Hispanic | n (%) | 10 (18%) |
| Black or African-American | n (%) | 5 (9%) |
| Asian | n (%) | 4 (7%) |
| Native Hawaiian or other Pacific Islander | n (%) | 1 (2%) |
| Other | n (%) | 1 (2%) |
| Country | ||
| Brazil | n (%) | 15 (27%) |
| USA | n (%) | 11 (20%) |
| Germany | n (%) | 10 (18%) |
| Argentina | n (%) | 6 (11%) |
| Spain | n (%) | 4 (7%) |
| Turkey | n (%) | 3 (5%) |
| Japan | n (%) | 2 (3%) |
| Malaysia | n (%) | 2 (3%) |
| Mexico | n (%) | 1 (2%) |
| Australia | n (%) | 1 (2%) |
| Lithuania | n (%) | 1 (2%) |
| Age at the last visit to the physician | ||
| Min | 0.3 | |
| Max | 30 | |
| Mean | 13.25 | |
| Median | 11 | |
| Range | 29.7 | |
| Kurtosis | −1.11 | |
| Status at time of interview | ||
| Living | n (%) | 30 (53%) |
| Deceased | n (%) | 20 (36%) |
| Unknown† | n (%) | 6 (11%) |
*Gender unknown: diagnosed in utero, sex undetermined.
†Status at the time of interview: lost to follow-up.
MPS VII, mucopolysaccharidosis VII.