Pregnant women's attitudes and willingness to pay (WTP) for carrier screening for deafness genes
| Statement | Definitely not % (number) WTP (£) (number) | Probably not % (number) WTP (£) (number) | Don't know % (number) WTP (£) (number) | Probably yes % (number) WTP (£) (number) | Definitely yes % (number) WTP (£) (number) | Test |
|---|---|---|---|---|---|---|
| If the test was available, do you think you would like to know if you were a carrier of a deafness gene? | 2.9 (3) | 11.5 (12) | 15.4 (16) | 46.2 (48) | 24.0 (25) | |
| Mean WTP | 0.00 (2) | 28.00 (10) | 33.00 (14) | 38.00 (44) | 63.00 (24) | Z=5.07, p=0.027 |
| If you and your partner did have tests, and were both found to be carriers for a deafness gene, do you think that you would ask for tests to find out if the baby would be born deaf? | 3.8 (4) | 7.7 (8) | 14.4 (15) | 43.3 (45) | 30.8 (32) | |
| Mean WTP | 0.00 (3) | 10.00 (6) | 23.00 (14) | 37.00 (40) | 66.00 (31) | Z=17.36, p=0.001 |
| If in pregnancy your genetic tests indicated that the baby would be deaf, do you think that you would have a termination? | 47.1 (49) | 26.0 (27) | 20.2 (21) | 0.8 (6) | 1.0 (1) | |
| Mean WTP | 26.00 (42) | 50.00 (25) | 67.00 (20) | 33.00 (6) | 20.00 (1) | Z=4.75, p=0.032 |
| If you and your partner were both found to be carriers, do you think that this knowledge would affect your decision to have more children in the future? | 23.1 (24) | 29.8 (31) | 28.8 (30) | 14.4 (15) | 3.8 (4) | |
| Mean WTP | 31.00 (21) | 43.00 (29) | 41.00 (26) | 46.00 (14) | 75.00 (4) | Z=2.10, p=0.151 |
| Even if you would not want a carrier test yourself, do you think that the test should be available for other people? | 0 (0) | 2.9 (3) | 1.0 (1) | 46.2 (48) | 47.1 (49) | |
| Mean WTP | – | 15.00 (2) | 10.00 (1) | 25.00 (43) | 60.00 (46) | Z=12.65, p=0.001 |