Benefits of knowing about their own genetic condition (n=48) |
Knowledge had been helpful | 46 (96%) |
Would have preferred not to know | 1 (2%) |
Not sure | 1 (2%) |
Acceptability of informing other family members about genetic risk (n=51) |
Family member | 48 (94%) |
Genetic service | 46 (90%) |
GP | 47 (92%) |
Not acceptable at all | 0 (0%) |
Responsibility for informing family members about genetic risk (n=51) |
Not acceptable | 0 |
Family member | 27 (53%) |
Genetic service | 11 (22%) |
GP | 9 (18%) |
Joint (family and genetic service) | 2 (4%) |
Don’t know | 2 (4%) |