Table 4

How helpful were the stages of the tuberous sclerosis guidelines/care pathway development?

Very helpful Helpful Not helpful
National consensus (n=17)12  (71%)5  (29%)0
Review of publications7 (50%)7 (50%)0
Use of pathway5 (25%)12 (60%)3  (15%)
Multidisciplinary team (n=16)4 (25%)12 (75%)0
Drafting guidelines (n=16)3 (19%)11 (69%)2 (12%)