How time consuming did those involved in the development of tuberous sclerosis guidelines/care pathway find stages of the development?
| Very time consuming | Slightly time consuming | Not time consuming | |
| Review of publications | 6 (43%) | 5 (36%) | 3 (21%) |
| Drafting guidelines (n=16) | 3 (19%) | 9 (56%) | 4 (25%) |
| Use of pathway | 3 (15%) | 11 (55%) | 6 (30%) |
| National consensus (n=17) | 0 | 12 (71%) | 5 (29%) |
| Multidisciplinary team (n=17) | 0 | 10 (59%) | 7 (41%) |