Sociodemographic descriptions of the study participants (n=271) 19 to 77 years of age and of Finnish population of similar ages
| Variables | Study group % (No) | Finnish population1-150 % |
| Gender | ||
| Female | 57 (155) | 52 |
| Marital status | ||
| Living with spouse or partner | 72 (196) | 61 |
| Widowed, single, divorced | 28 (75) | 39 |
| Having children | ||
| Yes | 73 (199) | 1-151 |
| Employment status | ||
| Employed | 75 (202) | 58 |
| Unemployed or retired | 25 (67) | 42 |
| Highest level of education | ||
| Primary education | 37 (100) | 45 |
| Vocational or upper secondary education | 52 (142) | 43 |
| University education | 11 (29) | 12 |
| Under clinical surveillance | ||
| Yes | 68 (184) | |
| Gene test result | ||
| Mutation negative | 69 (187) | |
| Mutation positive | 31 (84) | |