Perspective
Shared decision making and non-directiveness in genetic counselling
Glyn Elwyna, Jonathon Grayb, Angus Clarkeb
a Department of
Postgraduate Education for General Practice and Department of General
Practice, University of Wales College of Medicine, Cardiff CF4
4XN, UK, b Institute of Medical
Genetics, University of Wales College of Medicine, Cardiff CF4
4XN, UK
Correspondence to: Dr Elwyn, elwynG@cf.ac.uk
Revised version received 10 September 1999;
Accepted for publication 18 September
1999
| The first 150 words of the full text of this article appear below. |
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Introduction |
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The term "genetic counselling" (GC) covers many different activities, but at its core it is a process of communication.1 It can refer to the diagnostic assessment of a child with multiple developmental problems. It can describe the facilitation of a decision making process in relation to predictive genetic testing for a late onset disorder. It can relate to a decision about prenatal diagnosis or the termination of a pregnancy at risk of a serious inherited disease. Topics discussed within GC can include plans for the continuing medical management of a person at risk of complications of a genetic disease, and can encompass whether or how to broach the topic of genetic disease with other members of the extended family.
The nature of the clinic discussion of these different elements of GC
will vary greatly, and any one consultation is likely to entail a
discussion of only one or a few
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